Singaporean Family Hits $2.4 Million Crowdfunding Target to Secure Life-Saving Gene Therapy for Infant Son

A Singaporean family has reached their $2.4 million goal to fund life-saving gene therapy for their son Faziq, who suffers from Spinal Muscular Atrophy.

By: AXL Media

Published: Mar 27, 2026, 6:34 AM EDT

Source: The information in this article was sourced from AsiaOne

A Milestone of Hope Amidst a Race Against Time

The parents of 10-month-old Faziq experienced a profound sense of relief on Friday as their crowdfunding campaign reached its ambitious $2.4 million goal. Norhaziqah Rosli, 35, described the moment as surreal, noting the emotional weight of a journey marked by deep uncertainty. The funds are earmarked for a one-time gene therapy known as Zolgensma, a treatment that is currently not covered by standard insurance or government subsidies. According to Norhaziqah, the successful collection of these funds represents a critical turning point, providing the family with the first tangible sense of hope since their son’s diagnosis.

The Shadow of Loss and a Second Genetic Battle

The urgency of Faziq’s situation is underscored by a tragic family history, as the couple lost their first child, Faris, to Spinal Muscular Atrophy in June 2022. At the time of Faris’s passing, the specialized gene therapy now being sought for Faziq was not an available medical option. This history made the news of Faziq’s diagnosis during the second trimester particularly devastating for the parents. While the infant has been managed with the oral medication Risdiplam since birth to delay the progression of the disease, medical professionals at the National University Hospital have identified the gene therapy as the most effective path for early intervention.

Logistics and Medical Preparation for Intervention

With the financial hurdle cleared, the family is now navigating the logistical requirements of importing the medication from the United States. The therapy is expected to arrive within eight to ten days, with Faziq scheduled for an elective hospital admission on April 14. To ensure the treatment proceeds as planned, the family is keeping Faziq largely isolated at home to prevent any illness that might delay the procedure. According to the parents, the focus has shifted entirely to medical readiness, with any personal celebrations being deferred until after the infant has successfully received the infusion.